March 9, 2020

“I don’t know how I missed it on my way in,” my sister Megan called to say, just moments after she left a visit to our cabin. “There’s a dead deer on the side of the road.” “The road” is the half-mile long driveway. No one could have accidentally hit it there; there’s no way to get up enough speed. It looked like it just fell over, leading to concerned speculation of chronic wasting disease, or an overdose on corn meant for the turkeys. Our neighbor John called to say he was going to go move it; would Bob and I be able to help? Bob looked up from his computer, said “I’d rather not, no,” as if I’d just asked if he’d like to pick up dog shit with his bare hands, and went back to the computer. “Yes, we can help,” I told John.

This current life is so far removed from anything Bob ever pictured for himself, I can sort of understand how he thought he could just say “no, thank you” on a dead deer job, and need to be reminded that he lives in the woods now and carcass disposal is a thing that happens in the woods. He’s made other progress, fully internalized his woodsman role, splitting and hauling all the firewood to keep the wood stove blazing. He’s just not big on deceased animals.

We gathered around the deer, and John spread out a blue tarp next to it. The tarp had tiny holes burned in it – from the night he burned his big brush pile. The tarp had been keeping the pile dry until it was time to burn. I’d mentioned that I had a little bit of old gasoline in a can that I needed to get rid of, and John told me to bring it over. My dad had lectured me extensively on never putting gasoline on a fire – only diesel fuel. But this was just a little bit of gas, and if John thought it was okay, it was probably fine. Well. I handed the gas can to John, and he dumped it on the brush, and dribbled out a little gas fuse on the snow, lit the fuse…and then it was clear why you don’t burn gasoline. The whole thing exploded in a booming fireball. John (luckily) didn’t ignite, but he had to feel to see if he still had eyebrows. Moments later, my classmate Tony, who has a place one lot over, came trotting down the frozen lakeshore, phone in hand to call 911. It sounded, and looked, like one of the cabins had blown up. No, no…just grown adults burning gasoline. Everything’s fine.

But the blue tarp, pulled to the side of the brushfire, took some of the burning fallout from the explosion, making little holes. It was still plenty useful for moving a dead deer.

We flipped the deer over onto the tarp; then we could piece together what had happened. There was a large scrape on one flank, and moving the deer caused it to start leaking from injuries that weren’t apparent before. It was likely hit by a car out on the big road, and made its way down the driveway before collapsing. We got it on the tarp and into the back of John’s truck.

My father, patriarch of the property, was directing the job from the comfort of his warm living room in town. He’d decided we should put the carcass by the osprey nest on the hill so the eagles would see it. Which is how Bob came to find himself stumbling up a slippery wet hill, dragging a stinking dead deer in a tarp. I was supposed to be helping with that part, too, but I’d worn the wrong footwear and was doing more actual falling than helping, so I just recorded the moment for posterity.

And since you can’t move a body around here without attracting attention, it wasn’t long before another neighbor pulled up to investigate. It was quite the party. This is how it goes, living in the woods.

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February 29, 2020

I think I've recovered from Mexico. It's exhausting to go from a pretty mellow life to days full of activities. We're just not used to it. We did a tour in the Sian Ka'an biosphere that included boating and floating down ancient canals carved through the limestone by Mayans. We started in cold, fresh water that flows out of the cenotes (underground caves), then through brackish water to the ocean. The canal float was amazing, through the mangroves. Our guide suggested wearing our life jackets like a diaper, relaxing and floating peacefully down the canal. My buoyancy was off, though; I no longer have significant floatation devices on my chest, so my hips, in the life jacket, kept coming to the surface, and, lacking the core strength to keep that under control, I sort of jacked up my back trying to keep my head above water. We saw a baby crocodile! It was about the size of a banana, so I didn't feel too threatened. Later, back in the boat, we'd see a manatee and a very large crocodile.

One evening at the resort, Bob and I were at dinner when we got a text from friends also at the resort, saying "check out channel 42." I immediately assumed there had been some sort of horrific event in the U.S., and channel 42 had the news coverage. When we got back to our room, we turned on the tv for the first time and started flipping through the channels. Sporting events, Mexican game shows, Law & Order with Spanish subtitles, Mexican soap opera...and hard core anal. That was a shocker, so to speak. Channel 42 was, apparently, the hard core anal channel. Which, as Bob pointed out, gets a bit tiresome after the second or third hour...just kidding, I watched Law & Order.

The resort was "adults only," which I guess explained the topless option at the pool, and Channel 42. I've had friends ask if it was a swingers resort. Huh. I don't think so? I mean, if it was, obviously Bob and I would have been approached, right? Like maybe if we'd stayed until the end of the Michael Jackson dance tribute, the swinging would have started? Or after Karaoke? I think just being really, really sweaty all the time maybe ruined my swing potential. Oh well.

February 24, 2020

There really is nothing more depressing than looking at a resort full of people on the dance floor, thinking, "Wow, this group is particularly old and fat" and then realizing they are you. This trip to Mexico happened because friends (two Canadians) of friends (two Brazilians, one who works with a Canadian) of friends (a Brazilian and an American) planned the trip and the rest of us glommed on like a game of telephone, couple by couple. One couple has a bit of an age difference, and they are the bridge between the old contingent and the youngsters. Another way to put it: The Americans are all old.

Observations: the youngsters (age range 30 to 40) have so much energy. They can sit in the sun, drinking all day, then look fresh as flowers at dinner, before proceeding to party well into the night. Their contributions to the conversation included pride at being the first generation with really good first person shooter games. Yeah, well, check this out: we didn't even have video games, except at the arcade. Until we got Atari. Or Merlin. Our video games needed imagination, and we're stronger for it.

Tonight at dinner we were at the resort's teppanyaki grill, and I was sitting next to the one couple not with our group, who turned out to be from St. Cloud -- a town located between Minneapolis and our cabin. So that was crazy. She is an RN at the VA hospital there, and he works for ADM. The conversation escalated in a bad way when it was evident that he and I had very different viewpoints on American agriculture; in sum, I learned, mine are wrong. Kind of a drag to find out the 26-odd years I've been working on sustainable agriculture have all been entirely misdirected and a complete waste. We changed the subject to how much bullshit it is that we're at the stage of life when our parents and friends are getting old and sick and dying, sharing horrific stories of our friends and family members, and ended up having a really lovely time. ADM guy shook my hand at the end of dinner and said he'd welcome chatting more about agriculture some time when he hadn't been sitting in the sun drinking all day. Maybe then I can also explore what his wife meant when she whispered about how bad the crime is getting in St. Cloud. I'm sure it would be enlightening.

February 21, 2020

After telling Bob he absolutely didn't need to bring two swimsuits to Mexico, I packed 17 different swim outfits for myself. Today's activities will include checking out the local Sears store, as Bob didn't pack any underwear. I abandoned the packing party too soon, after suggesting that more than one pair of shorts would be warranted, followed by the discovery that Bob seems to only own one pair of shorts. Bob's a minimalist. Or all the shorts now live at the cabin.

February 19, 2020 Mexico!

Friends called a couple weeks ago asking if we'd like to join them on a last-minute trip to Mexico. Pretty happy that we said yes. In preparation, I've hacked the foam cups out of my new 3-tiered tankini swimsuit top that makes me look like a mysterious flowy ball. I'm ready for the pool! I'm excited about getting extra mileage on last month's Florida pedicure. Bring on any Playa del Carmen attractions! (Including "leave Playa del Carmen"). We'll have a car.

November 21, 2019 part two: 51 Today.

51 today. This is the situation.

So fifty was...interesting. But the weird year sort of matched my inability to reconcile that 50 was, reportedly, my age. Being 50 years old was as preposterous as having cancer.

For months I've said I'm over and done and on the other side, and this only becomes more true as time passes.

There are few lingering effects of cancer and chemo. I have very short hair, but part of that is now by choice. My eyebrows are a bit thin, but good enough. I still get easily exhausted, not by normal daily life, but more with extraordinary effort, like hauling kayaks up into the shed and moving firewood and getting the boat off the lake. We had been working on those exact things at the cabin a few weeks ago when I said I needed to sit and catch my breath -- I was completely depleted. That's when Bob said, "Maybe you should get more exercise."

I was very weak and lacked the strength at that moment that it would have taken to end his life. I certainly was thinking something like "Fuck you," or "Fuck off," or "How about go fuck yourself." I might have said something along those lines. But we got the winterizing done and life went on.

Turns out I was only able to go on if I was replaying that exchange over, and over, and over in my head, while also thinking about any possible situation where my husband commenting "Maybe you should get more exercise" would be a helpful, supportive, welcome remark.

A few days after the initial incident, I was able to calmly explain this thought exercise to Bob, and report that in spite of trying really hard, I could not see how that would be helpful ever, in any situation. But ESPECIALLY, especially, less than five months after I completed chemo.

I think he heard me. And to make sure, because I'm a grown up (51 today, apparently, for fuck's sake), every time Bob mentions his sore neck or feeling tired or in response to seemingly unrelated things, I say, "Maybe you should get more exercise."

Ha! This isn't the story I thought I was writing tonight. A year ago things looked very different, but so it goes. Look at the expression on Abbie's face. "How did we even get here." I know, dog. I know. I wonder that, too.

If someone told me I'd be publicly posting topless photos of myself on my 51st birthday, I wouldn't have been too surprised, but on the other hand I wouldn't have thought they'd look like this. Happy to still be here; it's all pretty damn amazing. My deepest love to all you angels, and the love of my life, Bob Weidman, for hanging with me through this life, even when it's kind of lumpy and the part in the middle is in the frame. You are all my greatest joy, though I had some transcendent churros at Colita tonight.

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June 12, 2019

Oh, there’s more.

I try to group all of our in-person Minneapolis meetings and appointments together, so we can spend reasonable chunks of time in each place, city and country.

I had my post-chemo dentist appointment last week. You can’t get your teeth cleaned while having chemo and the resulting compromised immune system, to avoid any possible mouth infections caused from poking and scraping with sharp objects. I was telling my hygienist Jen about our stink fridge problem (I saw her the day after the horror was discovered), and she helpfully suggested many ways to remove the smell: stuff the refrigerator with crumpled newspaper, and replace every couple hours. Boil vinegar to remove lingering smells in the house. I asked if she had a second job as a crime scene cleaner, and she said, “No, my dad is a mortician.”

Later in the week, Bob tried to lock the back door of the house and the deadbolt latch just spun. Gave out. Instead of waiting days for the locksmith to come fix it, we could take the lock off the door and bring it to the shop to be fixed right away. Bob removed the lock, spent $5 plus tip on the fix, and managed to get it back on the door. This wasn’t without over an hour of frustration, including anger with me for not immediately leaping up from my nap on the couch the moment he needed assistance with installation. I proceeded to be not speaking to him because of his unrealistic expectations, so we both enjoyed a bit of solitude. Plus, the lock got fixed. The time from “fucked” to “fixed” was amazingly short. A high point of the week, for sure.

Our kitchen is next to the stairs to our basement, where the laundry is. I chuck dirty dish towels and dish cloths down the stairs after I use them, and eventually, when there’s critical mass, I gather them up and throw them in the washing machine. That’s exactly what I was doing when I heard the sound of dripping water coming from the corner of the basement. Bob was running water in the kitchen sink, and some of it was trickling through the basement ceiling and pooling on the floor. It’s not supposed to do that. I yelled up at Bob, “Come down here, we have a problem!”

Bob rushed down the stairs, stopped and said, “The mouse?”

Mouse?

“Isn’t this a mouse?” Bob asked, referring to a grey mass at the foot of the stairs, where I’d just picked up the dirty dish towels. Someone had given the mouse a craniotomy, making it easier at first glance to assume it was a dust bunny, not a dead mouse with most of its head chewed off.

Fucking gross. I started screaming. Not only had I almost touched it, I almost washed it. Almost just scooped it up into the washing machine with the pile of dirty rags. Ick. Someone killed it, ate its head, and hid the body under dirty laundry. Just the idea of pulling a freshly dried headless mouse out of the dryer after it tumbled around with my kitchen towels…No.

I put a pan under the leak and we escaped back to the cabin.

June 11, 2019

I know I've seemed unusually quiet lately...During the last round of chemo recovery, we spent over two weeks at the cabin. Every time we return from being away from the Minneapolis house, I’m particularly tuned in to whether I smell cat pee. When I’m in the house day after day, I worry that I’ve just gotten used to the pee smell, so the real test is after being gone a while.

This time, there was a smell, but it wasn’t cat pee. More like corpse. We didn’t notice anything dead on the floor, and the dog didn’t find and present us with a rotting rodent. It was a mystery until I opened the refrigerator, which apparently stopped cooling and started heating shortly after we left the house two weeks before. The timing is just a guess, based on the stench and the mold.

Bob disappeared and returned with both nostrils fully packed with toilet paper. My stink solution was to put peppermint oil on a bandana over my nose, but the oil was too strong and made my eyes water. We agreed on the plan before opening the fridge door; I would hold the bag, Bob would dump stuff in. There would be no emptying, rinsing and recycling containers. Our refrigerator was a Superfund site. We had to move quickly.

Our fridge isn’t off-limits to my hoarding. I watched condiments I’d had since college, now black with mold, disappear into one of about a dozen plastic trash bags. We couldn’t put much into each bag because they got heavy fast. There were a lot of mysteries; Bob was particularly distressed about the egg shells. Empty half egg shells, sitting in the back of the shelves, evidence that something terrible had happened in that fridge long before the compressor went out. We didn’t have time to stop and agree to not live like garbage people in the future, but we made a pact with our eyes. I did ask Bob to please stop announcing each item as he removed it from the freezer. “Fish.” “Waffles.” “Meat.” It was all liquefied and drippy.

Service Plus repair had an opening in four days. We secured a temporary mini-fridge the next day: Craig’s List, 1987 Montgomery Ward, $10. A person has to drive out to Eden Prairie for that kind of deal, and by the time we got home, there was bloody dog diarrhea on the living room rug. It continued for about 36 hours. Bob documented the dog’s stomach distress in vivid photos. Weirdly, our vet didn’t want to see all the pictures, but if you’re interested, Bob can walk you through the progression. We think that amidst the gagging and screaming while we were hauling bags of rotten food outside, the dog decided to taste the Salmonella puddle sitting in the bottom of the freezer. I was going to say that I’d take bloody dog diarrhea over rotted refrigerator any day, but Bob cleaned up the diarrhea, so I don’t really know.

I had retrieved the Bissell Spot Bot carpet cleaning machine from the basement and was filling the reservoir with new cleaning fluid. I didn’t notice that someone who wasn’t me put the machine away last time without emptying out the dirty water chamber. Not expecting it to be full, I accidentally dumped it on my feet.

We only use that machine to clean up animal vomit, pee or poop. Whatever got sucked up last time sat and steeped in the machine for several weeks, and when it hit my bare feet, I had a screaming attack followed by exhaustion, and when Bob said I should have been paying closer attention to not spilling it on myself, I was somehow unable to help any more with the diarrhea cleanup project.

June 10, 2019

At the end of civilization, all that will be left are rats and cockroaches. That’s pretty much how I feel about anything growing on my body at this point. Most all hair is gone, but anything remaining isn’t ideal. My head is covered in an alarming white fuzz. My eyebrows consist of the half dozen long, unruly grampa eyebrow hairs that I would normally have plucked, but now I slick down into a rough eyebrow shape. If I comb them straight up, they cover half my forehead. It’s not good, but they’re all I’ve got.

It's now over four weeks since my fourth (and final) chemo infusion. My ankles started swelling up last week, and my stamina was getting worse, not better. My oncologist informed me that some of the magical chemo side effects (swelling, exhaustion) of the more toxic drug (Taxotere) don’t kick in until now, and will wear off -- in about three months. About the time I have visible hair, I should be feeling great. My doctor stressed the importance of keeping active and pushing through the tiredness, which Bob has interpreted as his time to clock out as my personal chef, waiter and sherpa.

Meanwhile, things are crumbling around us. The squirrel/roof/solar panel situation is still not handled. My access to legal abortion is dwindling. Now that chemo has put me into menopause, I guess my chances of needing one are extremely slim. Time to take that off the bucket list. My 78-year-old father broke his leg. He has a workshop out by the cabins, and he comes up with some excuse to go to his shop most days. He was tilling up an area to plant a food plot for the deer and turkeys, and his tiller seemed to need servicing. He used two skids to roll the tiller up into the back of his pickup, then attempted to walk down one of the planks – which would have been great had it not slipped, dumping him in the gravel. He was able to heroically crawl around to his phone in the cab of his truck, and the ambulance eventually found him even through the driveway to the shop doesn’t have an address and isn’t marked. He now has a new knee – he smashed the tops of his tibia and fibula and the surgical fix seemed to warrant a bonus new knee. He’s practically bionic now; he already had two new hips. He’s anxious to get out of rehab so he can try to walk the plank again, and succeed.

Now that it’s warm out, I refuse to wear a hat on my white fuzzy head. It’s not my job to protect the public from all this. Visiting my dad in the hospital, I was confused when people tried to give ME a wheelchair.

May 23, 2019

Fourth and final chemo, Day 16.

I’m exhausted and twitchy and mean, and so ready to be done with all this. Bob reminds me that this is exactly how I felt at this point in all the chemo cycles. Such bullshit. I don’t want to talk about it anymore. I have nothing interesting to add. I want my hair to grow back, but I also want a visible, viable excuse to sleep late and take naps.

Our dog has been a complete jerk lately, and it’s entirely our fault. We let him be in charge. Dog says it’s time to go to bed? We go to bed. Dog says he’s going to eat some human food when the humans are done? Here you go.

Now he’s overstepped. He’s grabby and bossy. I hear Bob giving Abbie a treat: “Gentle…OW!! GENTLE!!” Yesterday I quietly opened the door to Bob’s office to give Bob a breakfast smoothie while he was on a conference call. Abbie followed me in, and as I was leaving, I whispered and motioned for the dog to come along. After a bit, Bob hopped up from his call to escort the dog out – I was wearing headphones and didn’t know Abbie was growling at me the whole time. He wanted to stay in Bob’s office (aka our bedroom at the cabin), and was letting me know. Asshole. We’re stepping up our efforts to remind the dog of the actual chain of command in the family, but it’s slow going.

We were down by the lake earlier. There’s an ice ridge where the ice pushed the bank up – there’s no gradual slope to the water, more of a hump and a short drop. Abbie isn’t a swimmer, and doesn’t pay attention to the water at all – but he’s very interested in gross smelly things that might be close by. I watched him sniff around the ridge, then slowly lower his shoulder to rub himself into some stink. I yelled, and when he turned his head toward me, he lost his balance and fell in the lake.

It was the best. Honestly, it was the high point of my week.

We’re enjoying top shelf, A+ level birds at the feeders. Rose-breasted grosbeaks, orioles, billions of gold finches, some indigo buntings, a few exotic sparrows and now the hummingbirds are back, too. I brought the orioles organic grape jelly from the Wedge Co-op, made without high fructose corn syrup. They ate the whole jar in about two days. I’m not prepared to support that level of consumption. They get cheap jelly now.

May 13, 2019

Two years ago we installed a $50,000 solar array on our roof in Minneapolis. We got into a really good incentive program that will pay for the system over ten years. At the time, our installer recommended that we get squirrel guard – a wire mesh fence around the edge of the panels so animals can’t get under them. Cost for squirrel guard? $900. I wasn’t going to fall for that scam. I called our tree trimmers out and they trimmed the tree that was the obvious super highway to our roof. Cost? $180. Savings? $720. I am a genius.

Fast forward to last month, when according to our phone app, half the solar panels weren’t generating electricity. The solar crew came out: squirrels are living under the panels and have eaten the wires. How are they getting up there? Magic. Cost to fix the chewed wires, plus installing squirrel guard? $4800.

The timing of this news has been great. I had my last chemo on Wednesday. Got the squirrel news on Thursday. Bob went into a reflexive panic when he saw the bid: it was the straw that broke the camel’s back that day. We can’t get ahead. We aren’t on track for retirement. We are doomed. I've been sick for months, so instead of reassuring him I also decided to panic. Between steroids and side effects, I don’t sleep very well the days after chemo. I got to think about the motherfucking squirrels all night long, over a couple nights. Only I wasn’t really thinking about the squirrels. I was thinking about the bad decisions I’ve made. All the things I’ve ever bought that I didn’t need. All the things I’ve said and regretted. I’ve had interminable chemo-hazed hours to review each and every one of them.

It didn’t help that we had also just dropped sort of a ridiculous pile of money on an impulse chair purchase. I was awake in the middle of the night (steroids), surfing Craig’s List for end tables for the cabin, when I came across a listing that included a fancy leather massage chair. I wasn’t looking for a massage chair; I was looking for end tables. We efficiently tested and secured both the massage chair AND another chair the people were selling less than 24 hours after seeing the listing. We got the chairs on the way home from chemo.

We got the squirrel news the next day.

Squirrels are costing us more than cancer. My out-of-pocket health deductible PLUS the ridiculous chair impulse buy is still less than the squirrel damage. During those sleepless nights, I tried to get my brain interested in fantasizing horrific and painful squirrel deaths, but it preferred focusing on what an idiot I am. I only have a vague squirrel plan. It involves gasoline, fire crackers and a trebuchet.

Final chemo, Day 6. Other than the squirrel setback, this round is going well so far. Other rounds, I’ve made the mistake of predicting that I’d feel great at a certain point, and scheduling activities accordingly. Then in real life, when I still felt like shit and had to cancel plans, I was failing. I wasn’t recovering fast enough. This time, I’m not scheduling anything, I’m telling myself that this will be the absolute worst round, all the cumulative poison will catch up to me, and I’ll be lucky to survive.

Compared to that, it’s been easy peasy. Even with the motherfucking squirrels.

May 7, 2019

Here we go! Last chemo tomorrow. Fingers crossed I'll also be getting rid of my PICC line after the poison goes in. I've had some tube sticking out of me most of the past six months -- more than ready to be done with that. I'm excited to have nothing to prep before bathing -- no clipping my post-surgery drain bottles to a lanyard around my neck, no stuffing my arm into a waterproof sleeve to keep my PICC dressing dry. It's crazy; a tiny hole in my arm needs to be kept meticulously maintained and sterile, while jagged pencil-sized holes in my sides were just fine left un-bandaged.

Had a great ten days at the cabin, enjoying beautiful weather and nice fires in the wood stove at night. The goldfinches arrived yesterday, and the rose-breasted grosbeaks today. Feeling good, but depleted, and now hopped up on pre-chemo steroids. Two weeks. Two weeks and I'm home free.

I haven't seen many people in the past six months. Updated nude. Accurate.

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April 28, 2019

Chemo round 3, Day 12.

You never appreciate the utility of nose hair until it’s gone.

Chemo 1 at this time the infection in my port was just starting up. Chemo 2, I was in the middle of a three-night hospital stay with neutropenic fever. Chemo 3, my naked nostrils and I are at the cabin, enjoying the open water on the lake with no fever in sight. Thank you, Neulasta Onpro!

Years ago, I met up with a friend who was living in Bangkok. Over dinner, she talked about her pervasive malaise, mostly centered around ongoing gastric distress. “If I was home in the U.S., I’d think I was dying. Living in Thailand, this is completely normal.”

That’s what it’s like living in Chemo. How am I? Fine! I’m doing great! At this point in the cycle, I’m not taking any of my “chemo meds,” to include steroids, anti-nausea meds, Miralax, stool softeners, antacids, narcotic painkillers. I’ll take an occasional sleeping pill, I’m still fighting thrush, but that’s pretty much it. However, I’m weak and a bit wobbly. I get tired very (shockingly) easily. I’m lightheaded every time I stand up. I think this bout of oral thrush is almost over, yet my mouth feels coated in cotton and my throat still hurts. My fingernails have weird ridges, and every time I blow my nose (which is often, as lack of nose hair somehow makes your nose run), the tissue is covered with a very fine spray of bright red blood.

If I wasn’t living in Chemo, I’d think I was dying.

But since this is where I am, I’m awesome! Based on my highly scientific self-test of how easily I can do word games on my phone, my cognition is good. I’m able to sit and work on my computer for hours, no problem.

And there’s no better place for that than at the cabin. It’s glorious here. Snow is gone, ice is out of the lake. I walked out with the dog last night to a round robin of loon calls. I’ve never heard so many at once. It was amazing. Today is cloudy and windy, but still nice. It is a good day for a fire in the wood stove, but I don’t know what I feel like doing about it. And by that I don’t know if I should start whining at Bob to make a fire now, or wait until later. Maybe I’ll start now.

April 21, 2019

Chemo Round 3, Day 5.

This is getting tiresome. But, as Bob predicted, we’re getting better at chemo as we go.

New this round, as seen on TV: Neulasta Onpro. The Neulasta boosts white blood cells. It’s pretty cool; it’s administered in a container a bit smaller than a Tic Tac box with adhesive on one side. The nurse stuck it to the back of my arm at the end of chemo, but it didn’t actually inject until 27 hours later. After it’s adhered and turned on, the needle engages (like being snapped with a rubber band) and a skinny tube goes into my arm (just a tiny bit, like the proboscis of an insect). The box flashes a green light. I’m part robot. The next day, by the time it injected all of the medicine, there were more flashes and beeps and it was very exciting. When it finished, I peeled it off and threw it away.

Cost? $5,000 to $7,000, depending on supplier. For one dose.

We’ve got another five or six days before we know if I’ve dodged the problems that have landed me in the hospital in the past. Hopefully! The chemo side effects caught up to me faster this round. But I’m well-armed with drugs (Ambien, Ativan, Vicodin, medical marijuana) and started the treatment for oral thrush the second my mouth started complaining. Still no nausea. That is so amazing. I have endless heartburn; Tums have become one of my sustaining food groups. I’m twitchy. Big muscle twitches that hurt, little twitches that are just weird. I feel like I have Mexican jumping beans under my eyelids. My teeth ache, my hands ache; I basically drug and distract myself through it. Just doing time.

April 17, 2019

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Obligatory Notre Dame photo. Initial gut punch tempered by reality of rebuild possibility, nutball conspiracy theories. Yes, Muslims did it. Probably Ilhan herself. I'm deeply terrified by the fucking crazytunes attack on Muslims, and fear for the lives of our Muslim elected officials. I stand with Ilhan Omar. And Rashida Tlaib. And Keith Ellison. I'm proud to have cast votes that helped put two of them in office.

April 16, 2019

Half way! Feeling good on the eve of Chemo #3. Well, “good” is relative. Not in the hospital, no fever. Painful body jolts have reduced to occasional twitches -- jolts will start up again this weekend. Panic is mostly in check, though I keep the Ativan close. There are many ways to worry about dying: as a result of chemo in the short term; despite chemo in the long term. I’d pretty much settled in to the fact my body is waiting to kill me; after a brain aneurysm hemorrhage in 2002, I know I have a second aneurysm just hanging out in my head. Biding its time. I have it scanned every year, and it hasn’t grown, but theoretically, that could change. One good thing about cancer – I hardly think about my aneurysm at all these days.

I’ve gone through a second round of hair exodus. I lost a lot of the fuzz on my head, and my eyebrows are thinning, but holding on. Eyelashes fell out, very inconveniently, into my eyes. You know that trick where you grab your upper eyelid by the lashes and pull it over your lower lid, to sweep an irritant out of your eye? I didn’t intend to pull out my eyelashes, but that’s what happened.

We just had a very nice week at the cabin, where the late-season snow was a good excuse for more fires in the wood stove. The migrating birds are coming back. The woods are jumping with activity.

I go for walks with Bob and the dog. I get tired. I’m a little wobbly. This far into the last chemo cycle, I’m not needing a nap every day, but some days. I iced my fingertips during the last infusion of the Taxotere, which is the more toxic of the two chemo drugs I get. That is supposed to prevent the poison from being taken up by that tissue, thereby avoiding neuropathy and pain side effects. It’s not a scientifically proven technique, and I didn’t do it the first round – and I did experience some numbness and significant fingernail sensitivity. After I iced the second round, I’ve had no symptoms in my fingertips. My hands still cramp and ache like the rest of my body, but overall, the icing seems worth it.

I’ve had very little nausea, but that comes with a general disinterest in food. I feel a bit off. Eating will sometimes set off a series of stomach cramping and gastric distress, which is pretty much eliminated if I vape pot before eating. The pot tastes like burnt ass, though, so the benefits are not without challenges.

That’s a pretty accurate account of every fucking thing to do with chemo. “The benefits are not without challenges.”

I keep testing my memory and cognition by playing a word game on my phone. There are six letters provided, which make up the words in an empty crossword puzzle that the player must fill in. If my brain is working, I can get through the puzzle easily. When the letters are S T A C O E and I can’t find “taco,” I worry that my brain is gone and never coming back. I don’t have any memory of TV shows we watched just last week, even as I watch them a second time. I feel like I’ve maybe seen some scenes in previews, but most of it is new again. That said, Veep is absolutely hilarious this season, and worth watching more than once.

I take Ambien every night. Better to sleep through the night than spend that time thinking about death. I’ll detox off of the sleeper as I’m detoxing off everything else. Starting June 1, we rebuild.

April 8, 2019, later in the day

The pack is together again! I'm home from the hospital. Bob has reported to me how Abbie has longed for my return, just lying by the door, or if sitting with Bob on the couch, always facing the door, waiting.

The dog's depression was so severe, and expected reaction to my return so great, that Bob wanted to film my joyful homecoming.

As soon as we pulled into the driveway, I got out quick and went around to the side of the house where Abbie couldn't see me out the window, and hid. Because this film was going to be an epic display of dog euphoria, and I didn't want to tip Abbie off to the surprise. And we don't have human children. Bob got in the house and got ready, and on his signal I walked in...and Abbie was like, oh, hey. You're back. Neat.

So that was a bust. Bob went back out to the car to get all my stuff (I needed to be unencumbered for the reunion), and the minute he walked out Abbie started emitting a high-pitched scream as he ran frantically from window to window, face pulled tight like a reptile.

The dog's mission and missive is clear: The pack must stay together. The pack consists of three people, of equal pack standing: Mom, Dad, and Abbie. The pack does not include kitties. The pack members must maintain physical contact at all times. Pack unity is of utmost priority.

I'm back. Pack unity restored.

April 8, 2019

Cancer isn’t all romantic septicemia, neutropenia and thrush.

There’s also the more pedestrian diarrhea, constipation, hemorrhoids, stomach cramping and nausea. I started this adventure mistakenly thinking I knew plenty about all those more commonplace maladies. At least as much as I ever wanted to know.

Knock on wood, but I’ve had extremely limited nausea. Smoking (vaping) pot before eating helps with stomach cramping and diarrhea, especially in the first week after chemo. Unfortunately, some of the drugs to mitigate chemo effects also cause constipation, so that’s a cost/benefit analysis…is it worth getting rid of the pain for a couple hours if it means no pooping for anywhere from one to five days?

Today I asked my nurse what she recommends for hemorrhoids. She said Tucks pads, and that she’d have some sent up from the pharmacy. I’ve never used them, but thought I had a pretty clear idea of what they were. A few hours later, the nursing assistant brought me a huge bundle, saying, “Here are your Tucks pads.”

Wow, I guess I didn’t know what Tucks pads were.

“How am I supposed to use them?” I asked.
“They go on the bed,” said the nursing assistant.
“To help with hemorrhoids?”

There had been some sort of miscommunication, and it made sense when I found out the bundle of bed pads are called Chux or Chucks pads, and they’re for incontinence. “Chucks pads” sounds a lot like “Tucks pads.” The Chux got returned, the Tucks got ordered and I thought we were getting to the end of the confusion when my nurse brought in the actual Tucks, gloved up, and approached with purpose, asking if I was wearing underwear.

Wait now. They’re very careful about how meds and supplies are doled out; I asked for Tums and was given one lonely Tum in a paper pill cup. My nurse would monitor my nasal spray use to confirm I was spraying only one spray in each nostril and then snatch the bottle away.

But it can’t be standard protocol for the nurse to take the lead on the cleansing ass wipe application? Really? I told her no, I was sure I could do it, and she seriously thought about keeping the package locked up until I requested them, Tuck by Tuck, as needed, up to the four applications per day as noted on my prescription. Tucks can’t possibly be prescription.

How the fuck would this even go? I press my call light. The nursing assistant comes into the room. I say I need a Tuck. She says the nurse has to administer that. The nurse comes in to confirm I need a Tuck. She leaves, then returns with a single Tuck rolled into a pill cup?

This all sounded like a whole lot of bullshit. They don’t seem prepared to handle hemorrhoids over here in the cancer ward. I wanted to get my sister Molly on the phone to straighten this shit out. Molly has worked as an OB post-delivery RN for years and years, and practically has advanced certification in hemorrhoids.*

I finally convinced my nurse that she could leave the package in the bathroom, and that the odds of me overdosing on witch hazel-soaked ass wipes were pretty low. She reluctantly relented, as long as I agreed to notify her every time I used a Tucks wipe so she could chart it appropriately. Fine. Whatever.

*I’d had a hemorrhoid conversation with Molly once where she mentioned that you can just tuck a Tucks** right in your ass crack and leave it if you’re having lots of irritation. I was thinking about that when I was handed the bundle of what turned out to be Chux, wondering how I could basically tuck a blanket into my ass and still wear pants. Very confusing.

**Definitely should be their next ad slogan.

April 7, 2019

It seems I’m taking the scenic route through cancer. Broadcasting live from Methodist Hospital, where I was admitted Friday evening with neutropenic fever.

We had planned to head up to the cabin Thursday, because the worst of the chemo side effects seemed to be over, but that was scrapped when I felt crappy and had a slight (99 degree) fever. I know 99 is basically like no fever at all, as my nurse mother would tell me when I tried to use it as a reason to stay home from school. What you have to understand is that I’m a reptile, and even when sick, I rarely get the thermometer reading up to 98.6. I called the cancer center and talked to my nemesis John the oncology triage nurse, who said it wasn’t worth freaking out about, and I should stay home and monitor it. But based on my last experience, I was freaking out. I made him get confirmation from my doctor. Yes, stay home. Don’t freak out.

The next day I was feeling more crappy, and my fever was up slightly. I called oncology triage again. Nope. If I got to 101.5, I would need to go to the ER and have labs run. Not before then. I am still trying to work out what the parameters of not feeling good are in the world of chemo. I knew I didn’t feel good, it didn’t feel like the chemo side effects, and I was stressed out about it. Ativan helped, and I holed up in the Recovery Lair (spare bedroom with TV and dog attendant).

Bob did not see the thermometer reading of 101.9, so he cannot confirm nor deny the accuracy of that assertion, but he didn’t push back when I said it was time to go to the Methodist Hospital Emergency Room.

To recap the previous hospital experience, I came in with a fever and feeling shitty and was admitted because my white blood cell count was very high: 24,000, indicating an infection. Something in the 6,000 – 12,000 range is normal. Turned out to be a bacterial staph infection (originating around my recently installed chemo port) that had moved to my blood stream: I was septic. I had septicemia.

Since I want to learn about all the options, this time I chose a different path on the adventure. Friday I came in to the ER with a fever and feeling shitty (sound familiar?) and was admitted because my white blood cell count was very low: 800, indicating that I had no ability to fight an infection. (Remember that the normal range is 6,000 – 12,000.) I had no neutrophils, a critical variety of white blood cell. I have neutropenia.

A low-normal neutrophil count is 2.5; when I came to the ER this time, my count was 0. I’m excited to report that I’m up to 0.1 today! Anything under 1 or 0.5 and the lab will make a special call to my nurse to report what’s termed a “critical result,” rather than wait for them to discover it in the computer system. Today my nurse got the call, but on the bright side, the news was better than it was yesterday. And my general white blood cell count had climbed to 1,900.

What does this mean? Well, it’s Sunday night and I’m still in the fucking hospital. Pretty crabby about that. More people are wearing masks around me. I have to wear a mask if I leave my room. I was going to say that Bob is trying very hard to be sterile but that’s not quite right. I’ve been getting lots of IV antibiotics and basically trying to not get infected with anything as we wait for my numbers to come up. We’re also waiting to see if I’m still harboring any of the staph bacteria from last time. It takes 48 hours to know if anything is going to grow. We hope not.

The whole white blood cell deal is crazy. To summarize my essay on white blood cells: if you have too many, you better be able to explain why, and if it’s an infection, you need to stop it before it stops you. If you don’t have any white blood cells (because chemo killed them), you need to Boy in the Bubble yourself so you don’t get sick, take antibiotics to kill anything that might be lingering, and wait for your body to grow more. I think that’s the gist of it.

I’ll hopefully go home from the hospital tomorrow.